Today hubby and I made a trip little over an hour from home to meet with a Lyme Literate Neurologist.
I really liked this doctor a lot; although what he/she had to say was not what I wanted to hear. I suffer with Neuro Lyme issues. The bacteria has taken of home within my brain and does not want to leave. It is quite content after 6 years...shoot I wouldn't want to move either if I was that comfortable!
The task at hand is to see if we can evict the bugs from my brain! OOH that's just GROSS!!
We went over all my symptoms from blurred/doubled vision, headaches, stuttering, swallowing issues, fluctuating numbness, right hand slight tremor, right and left leg weakness along with walking issues and lets not forget the fatigue and all over body pain especially the leg pain issues.
I was given a complete neurological in office work-up. I also brought my binder which holds 6 years of doctor visits and varieties of test results.
Final analysis: No doubt its Neurological Lyme issues with Spactiscity and Parkinsonism. I was also told that the oral antibiotics most likely are not doing me much good. That IV antibiotics are my best shot at trying to evict the bugs. IV therapy goes directly to the brain, oral does not. Anyone that has been following my blog knows I so don't want to go to IV therapy. I am very scared. OK call me chicken I am not ashamed to admit it!
I also was told that the neuropathy is best going to be treated with narcotics. Nice...(OK I am being sarcastic!!) The doctor will send a detailed report to my LLMD. I can see my LLMD reading this report and shaking his/her head in agreement...He/She has been pushing me to do IV for a very long time...I am very persuasive in getting my way! Now I am thinking I might not have been very smart in holding off so long on IV therapy.
I felt really sad today. Its been a rough couple of weeks. I got fitted for a custom made leg brace, and now I am feeling backed into a corner about IV therapy...I also am feeling blue as there is once again this huge feeling of "loss of self" I am sad tonight as I think back 6 years ago at the start of this journey when hubby and I tried to tell doctors we felt I had Lyme Disease. I am feeling sad because had one of them taken us seriously maybe, just maybe I might not be so ill today.
I want to get better. So I am sure next time when I meet again with my LLMD we will seriously discuss IV therapy. It's a given. Wanna bet he/she wins this time?
A PERSONAL INVITE - local friends, a lyme awareness evening is coming to tsawwassen, BC and you are invited to attend! it is an evening that is designed to raise lyme awarenes...
3 days ago