Tuesday, March 22, 2011

Lyme Disease in your Neighborhood!!

I find it increasingly frustrating and difficult to stomach people and forums alike who neglect to give Lyme Disease the recognition it deserves as a true real disease.

After 6 years of going from doctor to doctor seeking a correct diagnosis for what was making me so ill I was elated to finally have a concrete true disease. Little did I know two years ago the path I really was being thrust onto.

The last two years for me have been nothing short of an adventure. I have learned a lot about how important supplements are in this battle. Daily I fight the battle of "good" nutrition and how necessary it is in this fight.

I have grappled with numerous medications and side effects that come with them. Only to find out there were more yet to be tried.

Yet through all of this the most disappointing issue I am faced with over and over again it is the ignorance of not only the medical professionals but also a society that does not know anything about our disease or our battle!

This has proven to be exhausting!

I can't help but wonder how many more Lyme patients will suffer due to ignorance? If we have insurance it is of no use to many of us. Our disease is not recognized as a true disease. Often we are forced to choose alternative medications because we cannot afford the ones we ought to have! One month of IV Rocephin runs roughly $1,600.00 who has that kind of money?? At a time in life when we struggle to keep not only our jobs but also our homes...forced to make choices that often our meds are put to the side.

Tonight my words are directed at those of you who ignore our disease. It is real. It is for many of us nothing short of debilitating....It sucks...

We are human beings, very ill and fighting to live healthy normal lives once again...we are Mothers, Fathers, Son's, Daughters, Grandmothers, Grandfathers, Aunt's, Uncles, and sadly babies, children, teens and YOUR NEIGHBORS....don't ignore us...help us...stand with us...see our disease for what it is....

I bet if you took the time to ask you'd be surprised to find Lyme Disease is in YOUR NEIGHBORHOOD!!

2 comments:

deb said...

Oh My.... This is exactly how I am feeling today. EXACTLY! It is as if you took the words right out of my mind and mouth and wrote them. Thank you for sharing your story. It is such a blessing to know we are NOT alone. We may not have a lot of community (Non-LYME) support but we DO have A LOT of LYMIE SUPPORT! Together we WILL make a difference. That is what I must keep reminding myself. I don't want to leave this world with out leaving my footprint of something positive I have done in my life.
~deb

btrflynana... said...

Deb
So glad you stopped by...yest it is frustrating to be where we are...yet like you I am determined to leave a postive mark on this earth before I depart! (I don't plan on departing for quite some time!!)

I pray we won't have to wait too much longer before the IDSA realizes/owns up to that THEY ARE SO WRONG!!

Those of us with Chronic Lyme know it is not all in our heads...Our pain and exhaustion and many other issues are real!!!

Hugs always btrflynana