I find it increasingly frustrating and difficult to stomach people and forums alike who neglect to give Lyme Disease the recognition it deserves as a true real disease.
After 6 years of going from doctor to doctor seeking a correct diagnosis for what was making me so ill I was elated to finally have a concrete true disease. Little did I know two years ago the path I really was being thrust onto.
The last two years for me have been nothing short of an adventure. I have learned a lot about how important supplements are in this battle. Daily I fight the battle of "good" nutrition and how necessary it is in this fight.
I have grappled with numerous medications and side effects that come with them. Only to find out there were more yet to be tried.
Yet through all of this the most disappointing issue I am faced with over and over again it is the ignorance of not only the medical professionals but also a society that does not know anything about our disease or our battle!
This has proven to be exhausting!
I can't help but wonder how many more Lyme patients will suffer due to ignorance? If we have insurance it is of no use to many of us. Our disease is not recognized as a true disease. Often we are forced to choose alternative medications because we cannot afford the ones we ought to have! One month of IV Rocephin runs roughly $1,600.00 who has that kind of money?? At a time in life when we struggle to keep not only our jobs but also our homes...forced to make choices that often our meds are put to the side.
Tonight my words are directed at those of you who ignore our disease. It is real. It is for many of us nothing short of debilitating....It sucks...
We are human beings, very ill and fighting to live healthy normal lives once again...we are Mothers, Fathers, Son's, Daughters, Grandmothers, Grandfathers, Aunt's, Uncles, and sadly babies, children, teens and YOUR NEIGHBORS....don't ignore us...help us...stand with us...see our disease for what it is....
I bet if you took the time to ask you'd be surprised to find Lyme Disease is in YOUR NEIGHBORHOOD!!
A PERSONAL INVITE - local friends, a lyme awareness evening is coming to tsawwassen, BC and you are invited to attend! it is an evening that is designed to raise lyme awarenes...
5 hours ago